Friday, May 28, 2010

Blog from Manny

Hi Everyone -  This is actually Manny writing this post because Kelly is very tired and under lots of anxiety, stress and the like at this time.  I wanted to give everyone the latest update on our situation as it’s impossible to answer every call and text.  I think Verizon is going to be very happy with us this month, hopefully Kelly has us set up with unlimited minutes and texts lol.  Well...I will try to make this short and sweet as I am not nearly as good of a blogger as my lovely wife.  

It started on Monday afternoon when our primary physician recommended that we go to the ER ASAP because Kelly was experiencing a high heart rate (125-130) and she was loosing almost all function of her lower half, walking was becoming impossible.  So we drove up to O'Connor hospital at 10:00pm on Monday night.  Much to our surprise the ER was crazy packed...more then 50 people ahead of us.  Kelly got frightened at this point and began to get very upset (caused by steroids mostly).  Well my mom (Adela) was somehow able to talk the nurses desk into getting to Kelly right away.  By 11:00pm we were in a ER Room.  Unfortunately, that was just the beginning as they had to ran a multitude of tests on poor little Kelly.  They finally decided to admit her at 6:30am..what a long night. 

Since Monday we have been in the Hospital running more tests.  The Dr's could not find anything wrong so they figured to truly know what was happening they would need to perform a lumbar puncture(spinal tap) to get fluid from the spine to check for cancer.  That was done on Wednesday and as of right now (Friday afternoon) we don't have the final official pathology report.  However early reports are showing about 50% of the cells in the spinal fluid are showing suspicious stuff...which they believe is the breast cancer cells attacking the good cells.  Our Dr (Skates) has told us we basically only have one option for treatment, which is a special type of chemo therapy that is injected directly into the spinal fluid.  This can be done two ways..first is by way of a spinal tap in which Kelly would have to come to the hospital each and every time...not a good way to go being that is so painful.  The second option is we have  port put in just under the scalp of her head. This procedure will need to be done by a neurosurgeon here at O'Connor.  This option will make things much easier in the long run for Kelly's future treatments so I think this is what we are leaning towards.  The neurologist on staff here is suppose to meet with us sometime this afternoon to talk about the procedure.  This new information does leave us in a sort of dilemma because Kelly was scheduled to start a trial version of a drug called PARP inhibitor next week, but our Doc believes by doing the spinal treatments she may not be eligible for the trial.   Hopefully this is not the case but it might very well be.  I wish I had better news but it just seems like we keep getting hit with stuff we don't want to hear.  Hopefully, god willing, Kelly will get the procedure done soon and get the treatment she needs and be able to get home.  The tricky part will be getting the house set up well enough so that she can get around easily being that she cannot walk.  We have a home care case manager looking into getting us special home supplies to make the transition easier. 

Well everyone, now is the time we need all your positive energy and prayers the most.  We cannot give up this fight because I know Kelly is not giving up!  She is the strongest women I think most all of us have ever met and she is a inspiration to everyone.  She is my wife, my hero ,my everything and I will do all I can in my power to get her back to health.  Thank you for all the support you have given her over the past year...this blog has been one of the big reasons she has done so well through all of this so I thank you for reading and staying current on our situation. 

We love you all!  God Bless.  Manny Freitas

Also here are some awesome things Mark Silva has done for Kelly. His new tattoo with her name also a new addition to his paddle board. Awesome!

tat marks paddle

Also here is a picture of Kelly in the hospital.



Anonymous said...

We are sending you lots of positive energy and we'll keep on praying until the man upstairs gives her the good news that she so deserves Keep on fighting Kelley. We love you guys and thanks for keeping us updated. Love always Tim and Ligia

Anonymous said...

Sorrry Kelly i just noticed i mispelled your name. Ligia

Anonymous said...

Manny and Kelly,

Please know that EVERY positive thought and prayers that we have are going your way! You two are sooooo AMAZING! We are here for you both, so please let us know if there is anything we can do to help.

God Bless you both- We Love You!

Dan, Donna and Kids

Barbara said...

Keeping you both in my thoughts and prayers. Thank you for keeping us updated on the blog, as I'm sure it is difficult to put into words. Kelly, I know its been years and Manny I'm not quite sure if we have ever met, however please know that I am more than willing and able to come and be there/help out in any way I store run, praying, holding your hand, cooking a meal....I truly and dearly mean it.....please call/text, 408 605 1372. Lots of love and prayers, Barbara Talavera and Family

Anonymous said...

Thank you so much for updating everyone Manny. Kelly is such an incredible woman and you are her equally incredible knight, the two of you share such an amazing love for one another. God keep you all in his wonderful embrace during this difficult time, Juli

Anonymous said...

Just keep on fighting and smiling and your love for one another will get you through this! Stay strong, both of you!

Anonymous said...

Lots of love, prayers and positive energy being sent your way! Thanks for the update. I can still do Tuesdays whenever you're ready.

Jennifer Brown said...

Continued Prayers headed your way (for Kelly and the Family) I know how hard it is when someone you love has cancer...Kelly you are an amazing, strong and beautiful person, we love you and will continue praying for you, you are also on my church's prayer list so more people than you know are praying for you....May God keep you close and protect you..Luv Ya ...Jen Brown.....Always be joyful. Never stop praying.
~ 1 Thessalonians 5:16-17

Laurel said...

Manny, thank you so much for the update. You are both in my thoughts and prayers daily. Sending as much love and support as I can!

maria lourdes said...

Greetings!!!I am so deeply touched by your are one amazing person and you have an awesome family have been in the same situation..and it urges me to share you this site which might be of help to you.... FUDA HOSPITAL in CHina..they have intersting stories of stage 4 breast cancer that metastasized in skin that they were able to cure through alternative medicines and scientific...IN Jeremiah 29:11..the LOrd says unto u..."MY PLANS FOR YOU IS TO PROSPER YOU AND NOT TO HARM YOU...PLANS TO GIVE YOU HOPE AND A FUTURE!!!THE GOOD LORD desire great and mighty things for u and u just need to keep believing it...HOLD on to your faith...MAY the Lord's face continue to shine upon u..May He embrace u so tight...May His mighty blessings an favor be upon YOu and your husband and to all those who loves you and that includes me name is LOTUS...Godbless u!keep on smilin and keep speaking LIfe to your body as i have included you in my 24 hour prayer minsitry and have given your name to every churches i know...i'll keep following your blog...ciao for now

Jaxsi said...

If I speak in the tonguesa of men and of angels, but have not love, I am only a resounding gong or a clanging cymbal.

If I have the gift of prophecy and can fathom all mysteries and all knowledge, and if I have a faith that can move mountains, but have not love, I am nothing.

If I give all I possess to the poor and surrender my body to the flames,b but have not love, I gain nothing.

Love is patient, love is kind. It does not envy, it does not boast, it is not proud.

It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs.

Love does not delight in evil but rejoices with the truth.

It always protects, always trusts, always hopes, always perseveres.

Love never fails. But where there are prophecies, they will cease; where there are tongues, they will be stilled; where there is knowledge, it will pass away.

For we know in part and we prophesy in part,

but when perfection comes, the imperfect disappears.

When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put childish ways behind me.

Now we see but a poor reflection as in a mirror; then we shall see face to face. Now I know in part; then I shall know fully, even as I am fully known.

And now these three remain: faith, hope and love. But the greatest of these is love.

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